• Brothers and Sisters Through PRS (New April, 2010)
• Parry Romberg Foundation   
• Parry Romberg Mexico (New February, 2010)
• Parry-Romberg Syndrome Resource, Inc.   
• Parry Romberg Syndrome Information
• National Organization of Rare Disorders
• Medical Searches
• Romberg's Connection News
• Frequently Asked Questions about the Romberg's Connection
• Photo Album(New Photo July, 2010)
• Our Stories
• Parent's Page Share your experiences(New Story August, 2010)
• Romberg's Connection Meetings(New Meeting Added June 2010 - Emden, Germany)
• Where Our Members Are Located
• Our Own Romberg's Survey Results
• Our Romberg's 2000 Survey Results
• Our Romberg's 2003 Survey Results  
• The Romberg's Connection 2009 Survey Results
• 2009 Survey Results downloadable(Requires Adobe Reader)
• Parry-Romberg: A Clinical Survey
• Dr. Stone's Web Site
• Article As Published In "Neurology" September 2003(Requires Adobe Reader)
• Public Friendly Version of the "Neurology" Article (Requires Adobe Reader)
• Article As Published In "Practical Neurology" June 2006(Requires Adobe Reader)
• What is Parry Romberg Syndrome? (Requires Adobe Reader)
• This article was written by Sally VanRaemdonck and published in the December 2007 issue of InFocus, a newsletter for AARDA (American Autoimmune and Related Diseases Association) and is reproduced here with permission.
• Pediatric Articles
• Evaluation of methotrexate and corticosteroids(Requires Adobe Reader)
• Juvenile localized scleroderma: clinical and epidemiological features in 750 children. An international study(Added March 2010)(Requires Adobe Reader)
• Juvenile-onset localized scleroderma activity detection by infrared thermography(Added March 2010)(Requires Adobe Reader)
• A Presentation on Grief & Loss Relating to Parry Romberg Syndrome
• Surgery Soundboard -- A place to "post" your thoughts, questions & concerns regarding reconstructive surgery.
• Other Craniofacial Disorders
• Resources

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Last Updated August 15, 2010