The Romberg's Connection Guestbook

6) March 15, 2017 - 01:39
Name: Araceli
Location: Washinton USA
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Comments:
My daughter has been recently diagnosed with Parry Romberg.
5) February 9, 2017 - 03:05
Name: Caroline
Location: Nottingham, UK
E-mail:
Comments:
Hello from the UK. A short background - I've been noticing changes in the left side of my face over the last 8 - 10 years, and late last year started to wonder what was going on and whether it would continue or stop. Yesterday I saw a consultant who confirmed I have mild PRS, and gave me options for fat transfer surgery etc. Not quite what I was expecting from the week of my 38th Birthday!
4) January 18, 2017 - 17:45
Name: Heather
Location: Newcastle Upon Tyne. England.
E-mail:
Comments:
Along with PRS which has only occurred in the last couple of years, I have Sceleroderma en corp de sabre.
3) January 18, 2017 - 17:39
Name: Heather
Location: Newcastle Upon Tyne. England.
E-mail:
Comments:
I have been diagnosed with PRS in November 2016 & I will be receiving Chemotherapy in February. I am 42years old.
2) January 2, 2017 - 19:00
Name: Ensieh
Location: Beverly Hills, CA
E-mail:
Comments:
I would like to join the group/email list. My daughter has been recently diagnosed with Parry Romberg.
1) January 1, 2017 - 10:53
Name: Marilyn
Location: Iowa, USA
E-mail:
Comments:
Happy New Year to all our Romberg's family! May the New Year be kind to you.


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