The 2016 Romberg's Connection Guestbook

9) October 30, 2016 - 18:28
Name: Anthony
Location: Cape Jervis, South Australia, Australia
E-mail: lurch_7797@yahoo.com.au
Comments: I am a sufferer of both Parry Romberg Syndrome and Localized Scleroderma and have been since early childhood. Both are now dormant however have had 1 eye removed for cosmetic reasons. I am now an Adult with a child of my own.
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8) September 28, 2016 - 15:42
Name: April
Location: Huntsville, Arkansas USA
E-mail: brockelsbyapril67@gmail.com
Comments: Hello, I was diagnosed with scleroderma when I was seven years old. I am now twenty-nine. About a year and a half ago I begain to have seziors. Wich has lead me to believe I have more than scladerma. I believe what I have more goes along the line of this.I see a romatonalagist the being of November.
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7) September 21, 2016 - 01:07
Name: Narelle
Location: Australia
E-mail: relleandhugh@gmail.com
Comments: Background - I was diagnosed in 2001 at the age of 50, so atypical. Minor wasting occurred.
Question - Has anyone reported narrowing of the ear canal on their Rhombergs side? Mine is becoming a problem.
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6) July 31, 2016 - 13:10
Name: Becky
Location: United kingdom
E-mail: Becky@bluewelly.com
Comments: Can anyone relate to this. I have parry rombergs diognosed in 2006. I have recently developed seizures and have started Kepra anti-convulsants, which seem to be working. I have had a CT scan and MRI which apparently has shown a leision. Drs suggest it appears to follow in line with parry rombergs syndrome. I am 37 yrs old (uk) can anyone help if you have anything similar ?
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5) July 27, 2016 - 20:32
Name: Marilyn
Location: Iowa, USA
E-mail: rombergs@hotmail.com
Comments: Fadir,
Wenn PRS ein Teil Ihres Lebens ist, bitte kontaktieren Sie mich. Wir möchten Ihnen behilflich zu sein.
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4) July 27, 2016 - 10:59
Name: Fadir
Location:
E-mail: Auf Kopf, Knie und nase sollte nicht geschlagen werden
Comments:
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3) June 6, 2016 - 22:38
Name: Lisa
Location: Australia
E-mail: lisa.hornery@gmail.com
Comments:
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2) May 3, 2016 - 14:36
Name: Greg
Location:
E-mail:
Comments: Happy Birthday Terry :) You would have been 55. Can you believe it? Who would have thought we were born that long ago. But time passes by. It just does it much slower without you here. I love you and miss you as always. The world lost a great man way too soon. I hope everyone here at the connection is still going strong. Gods love to all of you.

Terry, I cant wait to someday see you again. Life is amazing, but it was more amazing every time I got to see you. You are missed and loved more than you could ever know.

Love, Your little brother, Greg.
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1) January 1, 2016 - 15:15
Name: Marilyn
Location: Iowa
E-mail: rombergs@hotmail.com
Comments: Happy New Year to all our Romberg's Connection family. May it be a healthy and happy one!
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