The Romberg's Connection 2009 Survey Results

After Child Birth

Page 70. IV. Triggers (page 2 of 2) cont.: Changes in symptoms after child birth
1. Please comment on the changes in symptoms after child birth:
Vision problems, Body feeling stiff all over, not able to walk or do anything. Changes in face, Changes in balance, thought and mood problems. Left eye dilation after surgery. Chronic constipation and fatigue. severe muscle and joint pain, low grade fever. headaches. Overwhelming feeling of feeling ill. Motion sickness. Intolerance to cold temperatures, very tough hard skin in all areas except Rombergs area where it's thin. Very small blood vessels, high blood pressure, borderline diabetic. Total body pain and weakness. Problems with kidney and kidney stones. Hypersensitivity to medications, Blood work abnormal.
After I had my son, when he was about 4 years old, that is when I noticed the problem.
The right side of my face started "melting away". It was at that time that I first sought treatment for the problem.
Hard to say if it was during pregnancy or after child birth....but for sure things got worse each time.
I lost my teeth prior to my pregnancy but it seems that most of the progression happened after the birth of my son.
Had first baby at age 28. Line appeared on nose, first noticed after baby born.
Has continued to progress since that time.
Noticed that symptoms increased after child birth.
I gave birth 7 months ago. I feel as though the scleroderma and PR has reactivated. I have definite spots of discoloration on my arms and torso that I did not have prior to pregnancy. I also have pain in my face. I believe it is the combination of hormones, stress and lack of sleep causing this progression.
I did have surgery right after my daughter was born- fat injections, but it could have been just the timing of when I could do it. I guess I cannot actually say for certain right now that I can remember a definite change from the times when I did have kids. sorry!
Tissue loss was more pronounced, before only bone structure had been changing now, then tissue was degenerating.
Discoloration, indentation, increased facial atrophy.
Number responding = 12 / percent responding = 8% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.