The Romberg's Connection 2009 Survey Results

Start During Pregnancy

Page 68. IV. Triggers (page 2 of 2) cont.: Start during pregnancy
1. Please comment on the symptoms starting during pregnancy:
Slight changes in my face began to appear during my second pregnancy and really accelerated after the birth.
It is only with hindsight that I realize I had PRS symptoms during pregnancy - third of four pregnancies was very difficult as I had mild paralysis on right side and was generally unwell.
Eye recession causing "droopy eyelid" after birth of 1st child. Aggravation during second pregnancy and after giving birth.
At first we thought I was retaining water and swollen on the other side, but after the birth of my child, we realized it was the other way around. No one was able to diagnosis me for 10 years and the disease progressed all through that time.
Vision problems, body feeling stiff all over, not able to walk or do anything, changes in face, changes in balance, thought and mood problems, left eye dilation after surgery, chronic constipation and fatigue, severe muscle and joint pain, low grade fever, headaches, overwhelming feeling of feeling ill, motion sickness, intolerance to cold temperatures, very tough hard skin in all areas except Rombergs area where it's thin, very small blood vessels, high blood pressure, borderline diabetic, total body pain and weakness, hypersensitivity to medications, blood work abnormal.
Number responding = 5 / percent responding = 3% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.