The Romberg's Connection 2009 Survey Results

Other Medical Conditions

Page 55. III. Associated Symptoms (page 4 of 4) cont.:
Other medical conditions
1. Please describe other medical conditions not listed above:
arthritis, lop sided body
Horners Syndrome where the pupil of my left eye does not dilate.
I have been recently refered to a Rheumatologist because I test positive for Anti ds DNA. I have also been suffering from total body pain and illness. I get Pyelonephritis with kidney stone along with SEPSIS if an infection is involved. I suffered from endometriosis for years and was diagnosed with secondhand infertility until 2 years ago when I got pregnant with my 2nd child. Also, I am hypersensitive to medications. I will get an allergic reaction to almost anything.
I have a cyst on one of my kidneys, 8 mm I had one on my up eyelash this one I operated and I have a small one on my right knee............ I also have cyst on my ovary I have problems with my stomach and the intestines. I have weight problems and I have negs on my skin. I have problems with learning. I can concentrate I understand but I don't assimilate the information .......... and sometimes I just can't remember the action with a few moments before.
fibromyalgia, chronic fatigue syndrome
loss of motor neurones on right side
spastic paralysis on left side of body
Bipolar disorder, I began with depression following my reconstructive surgery.
Back pains, I developed a mild case of Scoliosis from the muscle atrophy in my back.
Duane's Syndrome, one eye cannot look left. May or may not be related to Rombergs. Possible Raynaud's Syndrome also. Mother has this too.
During 2nd pregnancy, back, hip, knee and ankle problems that got so severe I was unable to walk and had to use a wheelchair for 1 month before and 1 month after childbirth. Since childbirth, my mobility has gradually been returning to normal. These problems were never formally diagnosed but could have been rheumatoid issues or SPD. Unclear whether related to PRS on not - I did not experience them during my 1st pregnancy, only during the 2nd one.
acid reflux, asthma, migraines, seizures, arthritis, loose joints,
Learning challenges, particularly with vocabulary and expressive language. Vision difficulty, as her left eye is deeper and lower than her right eye. This causes double vision, and probably also contributes to the migraine headaches. She is not a 'reader', and all of the above contribute to this. Her family is more into reading, so this is an unusual trait.
No sure which of her problems are related.
Progressive hearing loss, inflammation of cochlear nerve and depression are being treated.
asthma, sinus problems, slight hearing lose, eye movement problems, seizures, migraines, behavorial, arthritis
Number responding = 16 / percent responding = 11% of total respondents (143).

Page 55. III. Associated Symptoms (page 4 of 4) cont.:
Other medical conditions
2. Comments for Other medical conditions:
not sure related problems
low blood sugar high cholesterol (family history)
chronic pain at the donor site in my chest
Dad has Ankylosing Spondylitis
Don't know if these conditions are related to Rombergs but my small left side is the side affected by arthritis.
Number responding = 6 / percent responding = 4% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.