The Romberg's Connection 2009 Survey Results

Problems With Balance - Therapy

Page 47. III. Associated Symptoms (page 3 of 4) cont.: Problems with balance - therapy
1. Please describe the therapy:

Responses (3)
"Retraining the brain" exercises prescribed by physio for balance and falls prevention e.g. - standing tandem stance (heel to toe, feet straight) and holding for 2 - 3 minutes, progressing to doing this in bare feet on a spongy mat and with eyes closed - walking a straight line heel to toe - progressing to doing this moving head up and down or side to side. There are many exercises along these lines.
Physical and Occupational
WORKING ON CORE STRENGTHENING

Number responding = 3 / percent responding = 2% of total respondents (143).

Page 47. III. Associated Symptoms (page 3 of 4) cont.: Problems with balance - therapy
2. Please describe how successful it was:

Responses (3)
I have had great success with this therapy and it did stop the falls.
Physical Therapy very successful - affected Leg very strong. Occupational Therapy is not so good. Effected arm/hand has very limited mobility.
NOT VERY

Number responding = 3 / percent responding = 2% of total respondents (143).

Page 47. III. Associated Symptoms (page 3 of 4) cont.: Problems with balance - therapy
3. Comments concerning problems with therapy:

Responses (2)
Kept getting weak with pneumonia so would have to stop surgery.
Once you stop the exercises the balance problems do eventually return - need to keep them up on a regular basis.

Number responding = 2 / percent responding = 1% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.

As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.