The Romberg's Connection 2009 Survey Results

Numbness

Page 45. III. Associated Symptoms (page 3 of 4) cont.: Numbness
1. Please select the location of Numbness on the Head:

Affected

Responses
(95)

% of Number responding

Cheek

78%

Chin

41%

Ear

15%

Eye lid

19%

Forehead

41%

Lower lip

30%

Upper lip

41%

Nose

30%

Scalp

30%

Temple

30%

Number responding = 27 / percent responding = 19% of total respondents (143).
Note: This was a multiple choice question.

Page 45. III. Associated Symptoms (page 3 of 4) cont.: Numbness
2. Other locations of the body with numbness:

Other locations

Responses
(25)

% of Number responding

Arm

38%

Back

31%

Chest

Leg

77%

Neck

23%

Side

15%

Stomach

Other (Specify)
Feet

Number responding = 13 / percent responding = 9% of total respondents (143).
Note: This was a multiple choice question.

Page 45. III. Associated Symptoms (page 3 of 4) cont.: Numbness
3. Comments for Numbness:

Responses (12)
I have one spot on my upper right leg feels numb.
When I was a child before i got sick that sensation only happened when I stood on a part of my body and did not let the blood circulate but now it just happens and it's like I don't have those parts of my body I don't feel them.
This may be more tingling than numbness, or maybe both when it happens.
comes and goes
The numbness is constant for me.
Left side of body, loss of pain sensation due to PRS affecting right side of brain.
small area on knee
My forhead and muscles for my eyebrow are numb due to the surgeries I have had. After 22 yrs. I am able to move my eyebrow a little.
May not be PRS related at all, I also have Chiari Malformation Type I.
I'm on Topomax, so its hard to say whether or not these are from the PRS, or that... also, I have Lupus, so whose to say what causes what..???
I think most of the numbness came because of the surgeries.
I am not sure excatly where the numbness occurs.

Number responding = 12 / percent responding = 8% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.

As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.