The Romberg's Connection 2009 Survey Results

Muscle Loss

Page 43. III. Associated Symptoms (page 3 of 4) cont.: Muscle loss
1. Select the location of muscle loss:
Location Responses
% of Number responding
Other (Specify) 8
Number responding = 38 / percent responding = 27% of total respondents (143).
Note: This was a multiple choice question.
This chart has a link to additional information.

Page 43. III. Associated Symptoms (page 3 of 4) cont.: Muscle loss
2. Comments for Muscle Loss:
Can't be positive that the muscle loss in the arm and leg is due to PRS, but I don't have a similar pattern of muscle loss on the non-affected side of my body.
Now when the tissue it's not hardened and the atrophy "cleaned" all from my face and under my chin, sometimes I have the feeling that the parts that are missing are there like they contract or like pulsation, but in reality it doesn't happen. It's a very strange feeling.
No masseter muscle present on the left cheek.
Most of the loss of muscle tone in my body is due to not exercising regularly.
Due to lack of innervation on right side of face due to 7th cranial nerve palsy, left leg and left arm due to paralysis from brain. No muscle loss directly due to PRS.
Some atrophy on my right side of my neck internal and external. Loss of tissue and some weakness around my right elbow.
It's hard to tell the difference between muscle and fat sometimes! I suspect my abdomen also has less muscle.
If lifting weights, my muscle "power" is far less on the affected side.
I know of facial problems but not sure of the rest of body.
Number responding = 9 / percent responding = 6% of total respondents (143).

Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.