The Romberg's Connection 2009 Survey Results

Bone Loss

Page 20. III. Associated Symptoms (page 1 of 4) cont.: Bone loss
1. Please select any location of bone loss:
Location Responses
(147)
% of Number responding
Cheek bone36
55%
Forehead24
36%
Jaw bone41
62%
Temple18
27%
Skull28
42%
Number responding = 66 / percent responding = 46% of total respondents (143).
Note: This was a multiple choice question.



Page 20. III. Associated Symptoms (page 1 of 4) cont.: Bone loss
2. Other locations of bone loss:
Other
locations
Responses
(5)
% of Number responding
Arm1
20%
Back0
0%
Chest0
0%
Foot0
0%
Hand1
20%
Hip0
0%
Leg0
0%
Ribs0
0%
Spine1
20%
Other
(Specify)
None*
2
40%
Number responding = 5 / percent responding = 0.3% of total respondents (143).
Note: This was a multiple choice question.
* Two responses were "None" for "Other (Specify)".




Page 20. III. Associated Symptoms (page 1 of 4) cont.: Bone loss
3. Comments for Bone loss:
Comments
(19)
Also chin of the affected side.
Saw a dentist last year who took x-rays. He said that there is substantial bone loss on lower right jaw, causing damage to the roots of the teeth in that area. He said that I will need to have a bone graft and dental implants done to replace the existing bridge which is at risk of breaking.
The plastic surgeon who diagnosed said the atrophy was in the left cheek and the jaw, but I don't notice this to be so. Must be very mild if it is.
Cheek bone did not develop as much as other cheek.
My worst atrophy is on the top and side of my skull.
The 3D cat scan showed the bone loss and the dental x-rays.
Appears like a 'sinking' in the area.
The majority of my bone loss is on my forehead.
Very slight
She needs bone implants along with teeth implants on left side top and bottom.
I was only visually diagnosed at this time.
Roughly 5cm diameter circle on top on head, left side.
Indentation about the size of an adult palm on skull on affected side. No hair loss on head.
Haven't been checked properly; only listed the clearly affected areas.
Replaced by plastic cheek bone. Probable slight bone loss all over right side of face also.
Palate inside the mouth atrophied... lost all top teeth.
Roots of two teeth on lower left jaw were resorbed. Wisdom tooth on lower left jaw was also abnormally small.
Bad teeth
Bone loss didn't occur until after brain surgery for seizures which resulted in speech loss, weaknes on right side and some bone loss on left side eventually.
Number responding = 19 / percent responding = 13% of total respondents (143).



Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone.

Throughout this survey, when we use the term "Rombergs" or "Romberg" we are referring to: "Parry Romberg", "Parry Rombergs", "Parry Romberg Syndrome" and "PRS".

This is an unscientific survey designed to gather information from those who must deal with Rombergs on a daily basis.