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Please read the tributes to Terry.
My name is Terry and I live in Bremerton, Washington, USA, and I am a member of the Romberg's Connection.
I have had Rombergs disease since the mid 1970's. It started out as really horrible migraines, then I noticed a burning sensation on the left side of my face. I didn't know what was happening, and didn't find out what it was until 1984. I have had 3 operations trying to correct the damage Rombergs has done, but it seems the atrophy has not stopped yet.
For me, Romberg's has not been an easy disease to live with. As Kermit the Frog said, "It ain't easy being green."
Theresa and I came across each other by accident, but since that time we have found others with this same disorder. It is a huge source of comfort to me to be able to talk to people who have lived with the same day to day issues as I have.
It's good to know that none of us are alone.To you new people who have just found us, Welcome. We don't claim to have all the answers, but we do listen when you need someone to talk to.
And to all my friends in our constantly expanding little "family", thanks for being there, it has really made a difference.
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