Disclaimer: Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for consultation with one's personal physicians. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.
As a support group, The Romberg's Connection is unable to offer medical advice to anyone. However, we are presently working on a listing of doctors with Rombergs experience.

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Pink Flowers

Devyn
October 1, 2013

My story is nothing special. I was diagnosed when I was five years old. My bus driver noticed my left cheek looked bruised and he reported this to my mother and she asked me if someone hit me or hurt me and of course I said no. We both blew it off thinking it was a bruise from being a very dorky kid, I was always hitting something or getting black eyes from jumping off of my couch or high chair. Ha Ha. But the little bruise got bigger and with time there was an indentation on my left cheek.

I went through this long period of appointments and different doctors who weren't sure what it was. Until one doctor finally diagnosed me. Through these hard times I never felt bad about myself or got sad when somebody said I was ugly or weird I just understood that not everyone was going to understand. It did however hurt to see my mom sad and worried about me. I would always reassure her that I would be ok and that I love her. I have the best relationship with my mother that anyone could ask for, if I could have talked to GOD and personally created a mother for myself, I wouldn't have come close to making the beautiful woman he blessed me with. She is my heart and a big part of the reason I am so strong and feel so supported.

Throughout high school I stayed pretty quiet not really trusting anyone but family just to make sure people wouldn't hurt my feelings. I had one best friend and she's still my best friend. As a teenager people made fun of me all the time but I never let it get me down, it just made me even more understanding and accepting. I was the tough girl who stood up for the right thing when I saw someone else being picked on because I knew how it felt and I hated to see anyone cry for being who they were.

I LOVE LOVE LOVE diversity now and I am going to nursing school to give back to the healthcare community that helped me through a hard time. ONE WISH I have always had is to meet someone that had PRS and get to know them, I live in New Mexico and have never seen or heard of anyone with PRS except on this website. So I thank you for that and appreciate seeing all of these beautiful people on here. I love you all, thank you. STAY STRONG as I did and you'll realize how beautiful being different can feel and be. I am here.

Feel free to leave a message for Devyn at rombergs@hotmail.com

Pink Flowers

All photos and text are the property of the families represented, and may not be used without their consent.


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