Welcome to The Romberg's Connection

The Romberg's Connection is an international support group made up of over 500 individuals and families whose lives are affected by Parry Romberg Syndrome. We have come together to offer our strength, courage, support and friendship to one another.

A new feature has been added to the Romberg's Connection web pages. When a flag is displayed it will indicate this page has been translated into the language of that flag.

Parry Romberg Foundation
Parry Romberg Mexico (New February, 2010)
Parry-Romberg Syndrome Resource, Inc.
Parry Romberg Syndrome Information
National Organization of Rare Disorders
Medical Searches
Romberg's Connection News
Frequently Asked Questions about the Romberg's Connection
Photo Album (New Photo February, 2010)
Our Stories
MAS SOBRE LA ESCLERODERMIA
Parent's Page Share your experiences
Historia de Elena
Romberg's Connection Meetings
Where Our Members Are Located (Updated February 2009)
Our Own Romberg's Survey Results
Our Romberg's 2000 Survey Results
Our Romberg's 2003 Survey Results
The Romberg's Connection 2009 Survey Results
2009 Survey Results downloadable (Requires Adobe Reader)
Parry-Romberg: A Clinical Survey
Dr. Stone's Web Site
Article As Published In "Neurology" September 2003 (Requires Adobe Reader)
Public Friendly Version of the "Neurology" Article (Requires Adobe Reader)
SINDROME DE PARRY ROMBERG
Article As Published In "Practical Neurology" June 2006 (Requires Adobe Reader)
El Síndrome de Parry-Romberg por Jon Stone
Paediatric Dermatology
Evaluation of methotrexate and corticosteroids (Requires Adobe Reader)
A Presentation on Grief & Loss Relating to Parry Romberg Syndrome
Surgery Soundboard -- A place to "post" your thoughts, questions & concerns regarding reconstructive surgery.
Other Craniofacial Disorders
Resources

Sign Our Guestbook

Read Our Guestbook

Guestbook Archives
2009	2003
2008	2002
2007	2001
2006	2000
2005	1999
2004	1998

We've had (Counter Image Missing) visitors since January 1, 2009.

Past Visitors
2009 -	7,410	2003 -	9,734
2008 -	5,582	2002 -	31,280
2007 -	3,710	2000 -	15,987
2006 -	7,127	1999 -	16,825
2005 -	13,984	1998 -	7,667
2004 -	9,883

For more information about the Romberg's Connection, please e-mail us at rombergs@hotmail.com.

For questions or comments about this website, please contact Gerri Neal.

Disclaimer:Please be advised that everyone's experiences may be different and appropriate treatments may vary. Any medical information that you find on The Romberg's Connection website must NOT serve as a substitute for a consultation with one's personal physician. Our visitors should discuss any specific questions or concerns they may have about Rombergs with health care professionals who are familiar with the specifics of their special case.

As a support group, The Romberg's Connection is unable to offer medical advice to anyone, however, we are presently working on a listing of doctors with Rombergs experience.